Here is a quick update on my kidneys, you can read this post or watch the quick video. (I figured I could say and get more details in than I could writing it without it turning into a book!)
- My kidney function is at 15%, that is for both of them. This is a chronic condition that has been happening for some time, we just didn’t know about it. It was a such a good thing that when I got E.Coli about 5 weeks ago that the ER doctor noticed my creatainine levels were high when they were trying to figure out what was wrong with me. Normal level should be below 1.1 for a woman and mine is 3.5. The reason we have time to process is because my condition is chronic and not acute. We don’t know at what rate this disease has been working, but we do know it isn’t something that started last month and is happening overnight.
- My specialist would like to start the referral process for a transplant when we get back from China. He said that around 10% kidney function is when dialysis would come into the picture, so to get a transplant before that is necessary would be the ideal situation. He studied at UCLA and that is where I would be going. The waiting list for someone on dialysis is 7-8 years, so if it does come to me needing to get a transplant a living donor would be the route I would look to go. (My brother-in-law joked about this post on Facebook- “Need a kidney. #ASAP”. Probably not funny but I thought it was funny…) My family are not able to help because of the family history with kidney issues so there will come a point that I will need to ask for someone to consider and pray about giving me a kidney.
- I am also meeting with a naturopath doctor in San Luis and am doing everything I can in that way to see if I can increase kidney function or even delay the further increase in creatainine levels. My specialist doesn’t think this will be able to reverse damage that has already been done. Chris and I are hoping that even if I can stay around 15% function for longer because of herbs and a change in diet that we see that as a ‘win’.
How it all comes together in our minds:
I am trying to walk in wisdom between 3 different roads. I am going to follow the steps the specialist is laying out for me. We move forward with getting the referral process going when we get back from China and that way I’m already a few steps ahead in planning in case my kidney function should deteriorate quicker than expected. In the mean time I will continue to work with my naturopath doctor and see if there are methods that could increase my kidney function or at least keep me at 15% for longer. And at the same time I am going those 2 routes I am also praying that God could restore my kidney function.
How am I doing?
I am actually doing really well. I’m not in denial, but just taking things one step at a time. For me, the biggest prayer request that I have is just that even if I do need the transplant, that I would be able to prolong it for even a year+. This is why I am doing my best with what the naturopath Dr. tells me to do (herbs, diet change, increase water, etc…) yet I do know that it may just be genetics and I can’t increase function of my kidney. The main reason being that with sweet Nathan being only 10 weeks old right now I would just like for him to be older before I have to have the transplant. For his sake and for Chris’s. All of these types of questions would be covered when we do the initial assessment at UCLA.